Adrenoleukodystrophy (ALD) Online Support Group

Our stories are important. Will you share yours?


[Sorry I had sent this out the first time using the wrong type of message format. This one let's you respond directly to the thread.]

Ben's Friends is made possible by generous donors who help pay for the costs of maintaining our network. They share with us, and we would like to share your story with them. Post what Ben's Friends has meant to you!

In your post, we'd love to hear a bit about your Ben's Friends story: how you were welcomed, what the support of your peers did for you, how Ben's Friends has made a difference in your life and your family's life, or how being here has changed how you cope with your rare disease. Or anything else you can think of!

It doesn’t have to be long. And if you’d rather share your story privately, send a PM to me, or to ModSupport (find them in the members section.) Would you rather do a video testimonial? Even better! Send a PM to ModSupport. They will tell you the easiest way to do one.

Your turn! What has Ben’s Friends meant to you?


Mark Wilson, Moderator


Is there anybody out there who would like to say something positive about this Ben's Friends support site? We'd love to hear something that we can share with the people who support us financially during the annual fundraising drive.

Just a few words will do!