As previously posted, my son now 31 was diagnosed at age 29 with ALD. He is getting worse each week. Dementia, becoming verbally violent, refuses to eat, loosing weight. We have to bathe him, tell him to use the bathroom, dress him. His brain doesn't tell him he is hungry or that he needs to use the toilet. Doesnt remember anything. What worries me is that my wife and I are in our sixties and dont know what the future holds for him or us. Doctor tells us that if he gets a high fever he is to be rushed to a hosptial asap since it could be life threatening.
Anyway, its a constant 24 hour a day, 7 day a week hell, watching him deteriorate and what it is doing to our family every day.
Sorry to rant, thanks for the ears