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Adrenoleukodystrophy (ALD) Online Support Group

Meet the Real Dr House - Undiagnosed Diseases Department of the NIH - Meet Detective Doctors Diagnosing Medical Mysteries - Video

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Dr.Sanjay Gupta takes you inside The National Institute of Health where a team of brilliant doctors solve medical mysteries.

Meet the Real Dr. House.

This is an amazing video that wouldn't load under videos.

http://www.cnn.com/video/data/2.0/video/podcasts/gupta/site/2010/09...

The video does explain the program accepts the Rarest of Medical Conditions.

I hear & read heartbreaking Members story's everyday, that haunt me when I close my

eyes or try and rest. This is the place of last resort at the NIH in Bethesda , Maryland.

The Undiagnosed Diseases Program:

http://rarediseases.info.nih.gov/research/pages/27/undiagnosed-dise...

http://rarediseases.info.nih.gov/resources/6/recursos-en-espanol - Webpage in Spanish

http://www.genome.gov/27544402#al-1

http://www.genome.gov/27550959

http://www.genome.gov/27544402#al-1

Please watch the whole thing. It's about 20 minutes long. It's important to everyone that has a Rare Disease and maybe can help you or someone you love. One Patient they introduced was diagnosed with AL Amyloidosis. She now has a chance for survival. If no one can diagnose & treat you or a loved one please contact this program.

The Video takes a minute to Load.

MEMBER SUPPORT:

The following groups are not affiliated with NIH. These links are provided as a resource to the community. The groups listed may be able to provide information to those whose medical conditions remain undiagnosed.

In Need of Diagnosis (INOD) provides help and support to individuals with undiagnosed conditions.

In Need of Diagnosis (INOD)
P.O .Box 536456
Orlando, FL 32853-6456
Toll-free: 888-■■■■■■■■
Telephone: 407-■■■■■■■■
Fax: 407-■■■■■■■■
E-mail: ■■■■■■■■■■■■■
Web site: http://www.INOD.org

Syndromes Without A Name (SWAN) is a supportive organization for families of children who have undiagnosed, unnamed conditions, or who are still looking for a diagnosis.

Syndromes Without A Name (SWAN)
United States
Toll-free: 888-880-SWAN
Telephone: 269-■■■■■■■■
E-mail: ■■■■■■■■■■■■■■■■■■■■■■■■■■■
Web site: http://www.undiagnosed-usa.org