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Adrenoleukodystrophy (ALD) Online Support Group

How is everyone?


#1

It's been awhile since we have heard from some of you. Now is a good time to check in, say hello to our newer members, and tell us how you are and what is on your minds. I hope to hear from you soon.


#2

hello I'm good,My son Jerrick has been doing well. since he had his Bone Marrow Transplant.


#3

That is so good to hear, Tasha. We need to hear the success stories. All the best to you and Jerrick!


#4

Happy to see your messages

I am karthik from south india, i am suffering from ALD/AMN for the last 8 years.

I totally lost my walking, May i know about Bone marrow trans??


#5

i added you karthikeya

please look for my reguest i send to you


#6

Karthik, since tasha has friended you, I edited out the email address, to protect you from any lurking spammers. I encourage you to bring your own discussion about Sct, to get additional information from other members.


#7

Karthik, I'm not sure you understood me. We discourage members sharing personal emails and phone numbers on the site, for security reasons.


#8

Fine, I wont share again

Kindly share regarding ALD, in my Home town - there is no info or medical treats about ALD/AMN


#9

If you post a discussion requesting information, I can send a message about it to all of our members so that they can respond.