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Adrenoleukodystrophy (ALD) Online Support Group

General Discussions


Topic Replies Activity
Crisis Help Line

Are you in crisis, or maybe even feeling suicidal? Do need someone to listen and to support you right now? Take a deep breath, and find the helpline in your country: USA https://suicidepreventionlifeline.org/ Canada …

2 July 19, 2018
About the General Discussions category 1 May 26, 2016
Symptoms 5 April 21, 2019
New Features 2 July 19, 2018
Introducing our Newest Community 1 February 5, 2018
***Holiday Greetings from All of us here at Ben’s Friends*** 2 December 24, 2017
Not doing very well here 4 July 25, 2017
New Apps 1 January 18, 2017
Treatment for late diagnosed 8 March 17, 2016
New diagnosis 13 March 10, 2016
Early diagnosis of X-ALD/ successful treatment? 3 January 24, 2016
ALD & AMN Patient Learning Academy 1 January 15, 2016
ALD Connect's Post about a Patient Learning Academy in Austin, Texas 1 January 1, 2016
Updating and expanding community platform to support connection among people with rare illnesses 2 December 7, 2015
Laughing Baby 2 November 10, 2015
ALD/AMN Meet-up in Texas 1 November 3, 2015
Please beware 1 October 22, 2015
You tube video 3 September 30, 2015
Welcome Back! 5 September 21, 2015
Need Advice 8 September 11, 2015
What is the nutritious diet of Ald patients 2 August 29, 2015
New ALD diagnoses 14 May 26, 2015
So, what should I expect next 3 April 22, 2015
Carriers 2 December 20, 2014
CA Governor Jerry Brown Signed Bill to Screen Newborns for ALD September 2014 1 November 25, 2014
How is everyone? 9 November 22, 2014
FYI: SCT trial in Boston, UCLA, and MN is still recruiting 1 November 22, 2014
Too good to be true? 1 November 21, 2014
A little help from ALDLife 1 November 15, 2014
How to handle the news 15 September 22, 2014