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Adrenoleukodystrophy (ALD) Online Support Group

General Discussions


Crisis Help Line (2)

Are you in crisis, or maybe even feeling suicidal? Do need someone to listen and to support you right now? Take a deep breath, and find the helpline in your country: USA https://suicidepreventionlifeline.org/ Canada …

About the General Discussions category (1)
New Features (2)
Symptoms (2)
Introducing our Newest Community (1)
***Holiday Greetings from All of us here at Ben’s Friends*** (2)
Not doing very well here (4)
New Apps (1)
Treatment for late diagnosed (8)
New diagnosis (13)
Early diagnosis of X-ALD/ successful treatment? (3)
ALD & AMN Patient Learning Academy (1)
ALD Connect's Post about a Patient Learning Academy in Austin, Texas (1)
Updating and expanding community platform to support connection among people with rare illnesses (2)
Our stories are important. Will you share yours? (2)
Laughing Baby (2)
ALD/AMN Meet-up in Texas (1)
Please beware (1)
You tube video (3)
Welcome Back! (5)
Need Advice (8)
What is the nutritious diet of Ald patients (2)
New ALD diagnoses (14)
So, what should I expect next (3)
Carriers (2)
CA Governor Jerry Brown Signed Bill to Screen Newborns for ALD September 2014 (1)
How is everyone? (9)
FYI: SCT trial in Boston, UCLA, and MN is still recruiting (1)
Too good to be true? (1)
A little help from ALDLife (1)