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Adrenoleukodystrophy (ALD) Online Support Group

General Discussions


Topic Replies Activity
Community Help With Summer Fund Raiser For New Communities

Can you help us out? We have set a goal of creating 10 new communities over the next year. It costs $1500.00 to create, set up, and take online a new community. We trying something new for this ambitious project. A grou…

2 May 29, 2019
Crisis Help Line

Are you in crisis, or maybe even feeling suicidal? Do need someone to listen and to support you right now? Take a deep breath, and find the helpline in your country: USA https://suicidepreventionlifeline.org/ Canada …

2 July 19, 2018
About the General Discussions category 1 May 26, 2016
Symptoms 5 April 21, 2019
New Features 2 July 19, 2018
Introducing our Newest Community 1 February 5, 2018
***Holiday Greetings from All of us here at Ben’s Friends*** 2 December 24, 2017
Not doing very well here 4 July 25, 2017
New Apps 1 January 18, 2017
Treatment for late diagnosed 8 March 17, 2016
New diagnosis 13 March 10, 2016
Early diagnosis of X-ALD/ successful treatment? 3 January 24, 2016
ALD & AMN Patient Learning Academy 1 January 15, 2016
ALD Connect's Post about a Patient Learning Academy in Austin, Texas 1 January 1, 2016
Updating and expanding community platform to support connection among people with rare illnesses 2 December 7, 2015
Laughing Baby 2 November 10, 2015
ALD/AMN Meet-up in Texas 1 November 3, 2015
Please beware 1 October 22, 2015
You tube video 3 September 30, 2015
Welcome Back! 5 September 21, 2015
Need Advice 8 September 11, 2015
What is the nutritious diet of Ald patients 2 August 29, 2015
New ALD diagnoses 14 May 26, 2015
So, what should I expect next 3 April 22, 2015
Carriers 2 December 20, 2014
CA Governor Jerry Brown Signed Bill to Screen Newborns for ALD September 2014 1 November 25, 2014
How is everyone? 9 November 22, 2014
FYI: SCT trial in Boston, UCLA, and MN is still recruiting 1 November 22, 2014
Too good to be true? 1 November 21, 2014
A little help from ALDLife 1 November 15, 2014