Adrenoleukodystrophy (ALD) is a rare, genetic disorder that leads to brain damage and failure of the adrenal glands. It affects the body’s nervous system, causing the weakening and failure of the nerve impulse; thus leading to disability.

Bens Friends

Our mission at Ben’s Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them.

New Member Check In

New members, start your experience here. Introduce yourself and share your story. Let us welcome you

Newbies Guide to ALD

Included in this category are resources written by members by members and notes from the moderators. We strongly encourage all members to explore these pages. This category will grow over time to include more and more information

General Discussions

Open discussion about a range of topics relating to ALD


News from Bens Friends -


Events of interest to Lyme Patients. Just email to have the staff add your event.

Site Feedback

Discussion about this site, its organization, how it works, and how we can improve it.


FAQ about the ALD Community