Adrenoleukodystrophy (ALD) Online Support Group
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About the General Discussions category
Not doing very well here
Treatment for late diagnosed
Early diagnosis of X-ALD/ successful treatment?
ALD & AMN Patient Learning Academy
ALD Connect's Post about a Patient Learning Academy in Austin, Texas
Updating and expanding community platform to support connection among people with rare illnesses
Our stories are important. Will you share yours?
ALD/AMN Meet-up in Texas
You tube video
What is the nutritious diet of Ald patients
New ALD diagnoses
So, what should I expect next
CA Governor Jerry Brown Signed Bill to Screen Newborns for ALD September 2014
How is everyone?
FYI: SCT trial in Boston, UCLA, and MN is still recruiting
Too good to be true?
A little help from ALDLife
How to handle the news
PICC Line Arm from Care + Wear
Telemedicine Patient Education
Do you shop online, especially at amazon? your usual purchases can help ben's friends at no cost to you!
Sean Vitka & Blue Redefined Patient Organization Sponsors Ben's Friends
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