Adrenoleukodystrophy (ALD) Online Support Group
Adrenoleukodystrophy (ALD) is a rare, genetic disorder that leads to brain damage and failure of the adrenal glands. It affects the body’s nervous system, causing the weakening and failure of the nerve impulse; thus leading to disability.
Our mission at Ben’s Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them.
New Member Check In
New members, start your experience here. Introduce yourself and share your story. Let us welcome you
Newbies Guide to ALD
Included in this category are resources written by members by members and notes from the moderators. We strongly encourage all members to explore these pages. This category will grow over time to include more and more information
Open discussion about a range of topics relating to ALD
This is our new chat. Just reply. If you want to go to a private chat simply click on the mebers avatar and start messaging. You can invite others to join you. For now we don't have a "who's online" box but hope to add that feature soon!
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Events of interest to Lyme Patients. Just email to have the staff add your event.
Recommend a Doctor, Therapist, or Clinic (Positive
Discussion about this site, its organization, how it works, and how we can improve it.